Williams Syndrome Family BBQ

Medical Education 5 Responses »
Apr 032012

Williams Syndrome Summer BBQ

Understanding Williams Syndrome: Behavioral Patterns and Interventions


Comprehensive and readable, Understanding Williams Syndrome: Behavioral Patterns and Interventions is an essential guide for all those professionally, scientifically, or personally involved with this so frequently misunderstood and underserved population–psychologists, psychiatrists, social workers, and other mental health professionals; special educators and vocational counselors; speech-language, physical, and occupational therapists; audiologists; physicians; and parents.
 
In the last 20 years, Williams syndrome has captured the interest of large numbers of scientists and attracted considerable media attention in spite of its rarity (estimated at no more than one in 30,000 births). Those diagnosed display a unique pattern of behavioral, cognitive, and physical limitations and strengths with fascinating neurogenetic implications–a pattern that poses enormous challenges to their parents and caregivers.

The authors, a specialist in learning disabilities and a developmental psychologist, review basic information about Williams syndrome, its medical conditions, paradoxical profile, and neurobiological mechanisms; and discuss distinctive features of the language and perceptual and motor performance of children and adults with the syndrome. 
 
Other features include:
* Strategies for working with patients.
* An examination of the difference between Williams syndrome and other developmental disorders.
* Problem-specific alternatives for treatment.
* Analysis of new directions in research, clinical intervention, education, and systems for care delivery.
 

Throughout, they stress variations among individuals and subgroups in ability level, skills, talents, and problem severity; and emphasize the necessity of recognizing these components in planning treatment on an individual basis.

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williams syndrome

Medical Education 14 Responses »
Apr 032012

speech

Journey from Cognition to Brain to Gene: Perspectives from Williams Syndrome


A blueprint for the investigation of neurodevelopmental disorders, this book presents the work of a team of scientists using a multidisciplinary, integrated approach to link genes with human behavior. Using Williams syndrome as a model, leading researchers in neuroanatomy, neurocognition, neurophysiology, and molecular genetics have built bridges between disciplines to link higher cognitive functions, their underlying neurobiological bases, and their molecular genetic underpinnings. One of the book’s many strengths is that the scientists from each discipline studied the same individuals with Williams syndrome. As the book shows, Williams syndrome is a fascinating disorder because of the “peaks and valleys” among cognitive domains: severe intellectual deficits but remarkably spared and effusive language; specific impairment in spatial construction but great strength in face processing and sociability. By capitalizing on these dissociations in higher cognitive functioning, the book provides a model for the study of brain-behavior relationships as well as for the mapping of brain and behavior phenotypes to the genome and beyond.Contributors Ralph Adolphs, Twyla Alvarez, Lawrence Appelbaum, Ursula Bellugi, Dennis Burian, Xiao-Ning Chen, Michael Chiles, Stephan Eliez, Albert Galaburda, Hanao Hirota, Wendy Jones, Julie Korenberg, Zona Lai, Liz Lichtenberger, Alan Lincoln, Rumiko Matsuoka, Debra Mills, Helen Neville, Judy Reilly, Allan Reiss, Bruce Roe, Marie St. George, J. Eric Schmidtt, Erica Straus.

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Williams Syndrome – Emotions

Medical Education 5 Responses »
Apr 032012

Williams Syndrome – Emotions

The Strangest Song: One Father’s Quest to Help His Daughter Find Her Voice


This is the first book to tell the story of Williams syndrome and the extraordinary musicality of many of the people who have it. Interweaving science and the personal in a compelling narrative, author Teri Sforza follows the quest of biochemistry professor Howard Lenhoff to help his mentally handicapped daughter, Gloria. From his discovery of Gloria’s outstanding vocal talent and innate musical gifts, Lenhoff becomes convinced that people with her disorder have an unusual capacity for learning music, despite their profound mental disabilities. Lenhoff is at first rebuffed, called crazy, and finally vindicated when scientists – and his own formal research – confirm his hunch. Williams syndrome is a rare genetic aberration that occurs once in every 7500 births. It springs from a peculiar mishap on the molecular level, a tiny chemical error, but one that exacts an enormous toll on body, brain, and personality. The result is an atypical body and a profoundly asymmetrical mind. Thanks to Howard Lenhoff’s single-minded determination and love for his daughter, he succeeds in helping his daughter beyond his wildest dreams. Gloria’s talents take her to a concert at Washington’s Kennedy Center and a number of classical recordings. Lenhoff also helps establish the first residential college for mentally disabled musicians in Massachusetts. An inspiring blend of human interest and breakthrough science, “The Strangest Song” offers startling insights into the mysteries of the brain and hope that science can find new ways to help the handicapped.

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Williams Syndrome Music Savant Gloria Lenhoff covers many favorite tunes with her accordion!

Medical Education 5 Responses »
Apr 032012

Gloria Lenhoff lends her joyous, signature style to familiar tunes such as “Dream” and “It’s a Small World” accompanied by her accordion. The finale features other Williams Syndrome colleagues taking the stage with Gloria for an endearing group number!

Social Skills Training for Children with Asperger Syndrome and High-Functioning Autism (Practitioner Guides in Child Psy


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Harry. Williams Syndrome WS

Medical Education 15 Responses »
Apr 032012

My son Harry, he has just turned 4 here. He has williams syndrome. He is singing nursery rhymes to me and just being crazy as usual :)

Williams Syndrome Awareness Rectangular Sticker


Williams Syndrome is an illness that needs more recognition to the public. Williams Syndrome is a disease that is diagnosed everyday, and now you can show your support and create more awareness with the public by displaying this rectangular sticker. Williams Syndrome ribbon awareness rectangular sticker can be placed on your car, in your home or your office….or any other place you can think of! This rectangular awareness ribbon sticker should be displayed with pride! Start creating awareness and support for loved ones with this illness, so that a cure can be found!

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Waylon Jennings-Hank Williams Syndrome

Medical Education 25 Responses »
Apr 032012

Too dumb for NYC, too Ugly for LA

The Official Parent’s Sourcebook on Williams Syndrome: A Revised and Updated Directory for the Internet Age


This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to williams syndrome, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on williams syndrome. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Williams Syndrome: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Williams Syndrome; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Williams Syndrome; Chapter 5. Books on Williams Syndrome; Chapter 6. Multimedia on Williams Syndrome; Chapter 7. Periodicals and News on Williams Syndrome; Chapter 8. Physician Guidelines and Databases; Chapter 9. Dissertations on Williams Syndrome; PART III. APPENDICES; Appendix A. Researching Your Child’s Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Child’s Rights and Insurance; ONLINE GLOSSARIES; WILLIAMS SYNDROME GLOSSARY; INDEX. Related topics include: Beuren Syndrome, Early Hypercalcemia Syndrome with Elfin Facies, Elfin facies syndrome, Elfin Facies with Hypercalcemia, Fanconi type idiopathic infantile hypercalcemia, Hypercalcemia-Supravalvar Aortic Stenosis, Williams-Beuren syndrome.

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Williams syndrome video

Medical Education 3 Responses »
Apr 032012

This presentation on Williams syndrome was developed for Lee Ann Jung’s IEC/EDS 522 class on Working with Families at the University of Kentucky.

Journey from Cognition to Brain to Gene: Perspectives from Williams Syndrome


A blueprint for the investigation of neurodevelopmental disorders, this book presents the work of a team of scientists using a multidisciplinary, integrated approach to link genes with human behavior. Using Williams syndrome as a model, leading researchers in neuroanatomy, neurocognition, neurophysiology, and molecular genetics have built bridges between disciplines to link higher cognitive functions, their underlying neurobiological bases, and their molecular genetic underpinnings. One of the book’s many strengths is that the scientists from each discipline studied the same individuals with Williams syndrome. As the book shows, Williams syndrome is a fascinating disorder because of the “peaks and valleys” among cognitive domains: severe intellectual deficits but remarkably spared and effusive language; specific impairment in spatial construction but great strength in face processing and sociability. By capitalizing on these dissociations in higher cognitive functioning, the book provides a model for the study of brain-behavior relationships as well as for the mapping of brain and behavior phenotypes to the genome and beyond.Contributors Ralph Adolphs, Twyla Alvarez, Lawrence Appelbaum, Ursula Bellugi, Dennis Burian, Xiao-Ning Chen, Michael Chiles, Stephan Eliez, Albert Galaburda, Hanao Hirota, Wendy Jones, Julie Korenberg, Zona Lai, Liz Lichtenberger, Alan Lincoln, Rumiko Matsuoka, Debra Mills, Helen Neville, Judy Reilly, Allan Reiss, Bruce Roe, Marie St. George, J. Eric Schmidtt, Erica Straus.

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williams syndrome final

Medical Education 4 Responses »
Apr 032012

Final presentation for Theo-Comm. Williams syndrome analyzied

Williams Syndrome Awareness Rectangular Sticker


Williams Syndrome is an illness that needs more recognition to the public. Williams Syndrome is a disease that is diagnosed everyday, and now you can show your support and create more awareness with the public by displaying this rectangular sticker. Williams Syndrome ribbon awareness rectangular sticker can be placed on your car, in your home or your office….or any other place you can think of! This rectangular awareness ribbon sticker should be displayed with pride! Start creating awareness and support for loved ones with this illness, so that a cure can be found!

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Williams Syndrome – Thunder

Medical Education 13 Responses »
Apr 032012

New track from Williams Syndrome (Noisecontrollers)

Williams Syndrome Awareness Rectangular Sticker


Williams Syndrome is an illness that needs more recognition to the public. Williams Syndrome is a disease that is diagnosed everyday, and now you can show your support and create more awareness with the public by displaying this rectangular sticker. Williams Syndrome ribbon awareness rectangular sticker can be placed on your car, in your home or your office….or any other place you can think of! This rectangular awareness ribbon sticker should be displayed with pride! Start creating awareness and support for loved ones with this illness, so that a cure can be found!

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Williams Syndrome Music Savant Gloria Lenhoff performs the Jewish favorite “Hava Nagila (Hora)”

Medical Education 2 Responses »
Apr 032012

Accompanied by her accordion and her father Howard, Gloria Lenhoff concludes her performance at St Peters Episcopal church with this rousing rendition of the Jewish classic “Hava Nagila (Hora)”

Understanding Williams Syndrome: Behavioral Patterns and Interventions


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